Thursday, February 11, 2010

Questing, questing, questing, never resting...

Do any of you have kids that watch Backyardigans? That's a song from one of their episodes.

That's how I feel I'm on a quest to find out everything I can about Savannah's condition! I'd been holding off on posting about her appointment with the endocrinologist last week in hopes that I would have the results of the test he ordered and could give a full, more accurate post today. Unfortunately, this afternoon they informed me that part of her results were back, but not the results he needed to give us a diagnosis. She said to give them until the middle of next week. Easier said than done! I hate the waiting game!!!

Anyway, I'll try to summarize what we found out at Dr. Deeb's office last week:

He thinks that Savannah's condition is what is causing the cyst, not the other way around, which is what we'd thought up until this point. He believes that she is in precocious puberty. It's when a child's body goes into puberty early. It is nearly unheard of in a baby her age, his quote was that it's as rare as "lips on a chicken", lol. It can have a number of causes, including brain damage, problems with the pituitary gland, tumors in the central nervous system, problems with the adrenal glands, and a couple of very rare Syndromes. If the tests come back positive for androgens, we'll head into a laundry list of tests (including an MRI and CT in the world do they keep babies still for those anyway...?) to rule out all of these bad scenarios. Fortunately, 85% of the time (in girls) the reason for the onset of puberty is unknown and can be "turned off" (he said we would get into that later). I honestly just can't see her having any of those other causes, you know??? She is thriving so well, and aside from her physical development, doesn't seem to have any other issues. So, we're very hopeful.

After all of that though, he said that there is still a slight chance that she is not in precocious puberty, in which case we would continue on the path to find out more about the cyst on her ovary and what caused it, etc. Joe-Z and I joked afterward that we never thought we'd have been talking about it, actually hoping that she has a cyst, lol. Just the week before, we'd been hating that cyst and wishing it had never made an appearance at all. But, compared to the other options, it's looking pretty good! :o)

Either way, we're just excited to find out. To know where to go from here. We're actually really okay with it all. We fasted this month on her behalf, and while neither of us felt that she would be miraculously healed, we both felt very peaceful and felt that we would have the strength to get through whatever lies ahead. I'm so grateful for the blessings we receive from prayer and fasting. How would we make it through this life without them? Heavenly Father surely does love us!

If you'd like to leave a comment, please do! And if you'd like to say you're sorry for us, feel free! But know that we're honestly just happy! As Jim Bob Duggar said, "we're hoping for the best, and preparing for the worst." And it wasn't the worst! She doesn't have a malignant tumor on her ovary, and what she does have is treatable! So, life is good!

And besides, we're still hoping it's that silly cyst on her ovary :o)

P.S. - her 4-month well-check stats: 13 pounds, 10 ounces (50%), 25 and 1/2 inches long (90%), 73% for head circumference.


Cleo said...

What a cutie and growing so well! We love you all!

Nicole said...

Thanks for sharing. We'll keep you in our prayers.

Kristen said...

I had to take Kyce in last night for a rash and he is 13.3 pounds at 3 months/one week... it is so fun to have a thriving baby weight wise. Thank you for posting this.. when you said that whatever is going on with her little body is very rare..well Kyce has strep and they told us that is sooooo unlikely. I guess I freaked out a little, so you are a great example to me to just keep the big picture in perspective.

shantel said...

We will continue to keep you in our prayers.... I'm sorry you guys have had to play the dumb waiting game. :)

Rach said...

Fab attitudes! I agree completely. I've been reading along as all of this has been developing so the most shocking thing about this post is Savannah's 4 months stats, my 2 month old is as heavy as she is! How is he so huge?!

Megan Joy Hull :) said...

Hi Lindsey,

This is Megan Hull (formerly Joyner) I worked with you briefly at the YMCA children's playhouse in Tallahassee back when you were pregnant with your first. Wow, how time flies! I found your blog through Marquesas's blog and I just wanted to say that I admire your strength and faith. It is truly remarkable and I hope and pray everything will go well with your little one. She is absolutely adorable! Take Care- Megan

Tonya said...

Just to let you know, we've been praying for your sweet little girl! She's just adorable and looks just like her mama! :-) I agree that the most peaceful of blessings received does not have to be "it's gone" but just of peace and being able to cope and know that it's treatable and that she's going to be OK, it is wonderful. I've had a similar blessing of a disease that is not curable, but to hear Heavenly Father speak to me through my blessing that I'll be able to endure the pain was such comfort... She'll be okay, Lindsey and so will you! Love you!

the Rew Crew said...

Girl--I love you so much and think you have such a beautiful family. Little Savannah is such a cutie and I'm in awe of the patience you have with THREE little ones!!

Keep us posted on her condition!!

Hilary said...

Awh, she is ADORABLE and it's amazing how health situations can change our perspective.

All things will be for you good, which is SO mcuh easier said then done.

Good luck with things!